Elisabeth Raab Accelerator of Science to End Neurofibromatosis (ERASEnf)
has identified critical gaps in care and research that limits the development of innovative care models that improve the overall quality-of-life in neurofibromatosis patient population. ERASEnf is dedicated to building a collaborative teams focusing on biological, psychological and sociological well-being of patients with neurofibromatosis.
Goals
- Advance our understanding of the biology of neurofibromatosis related tumors and develop novel treatment options
- Advance research into innovative care models that take into consideration the psychological and sociological domains of well-being in neurofibromatosis
Objective
To take a holistic approach to the neurofibromatosis condition and be a catalyst for innovation in neurofibromatosis management.
Mission Statement
Directors
Gelareh Zadeh MD, PhD, FRCSC, FAANS
Dr. Gelareh Zadeh is the Dan Chair and Professor of Neurosurgery at the University of Toronto and the Division Head of Neurosurgery at the Toronto Western Hospital. She holds the Wilkins Family Chair in Brain Tumor Research focusing on building surgical clinical trials for brain tumor patients. Internationally, she is the Editor-in-Chief of Neuro-Oncology, an open access journal of Society of Neuro-Oncology and European Association of Neuro-Oncology. She is also Past-President of the Society for Neuro-Oncology.
Dr. Zadeh is the co-director of the Elisabeth Raab Adult Neurofibromatosis Clinic at the University Health Network. Her clinical practice focuses on Skull Base Neuro-Oncology. Her research program focuses on studying the genomics of nervous system tumors, specifically tumors that are typically considered to be benign tumors by world health organization (WHO) classification, however due to intimate and invasion of critical neurological structures pose a considerable challenge for the care of outcome of patients.
Gelareh Zadeh MD, PhD, FRCSC, FAANS
Suganth Suppiah is an Assistant Professor of Neurosurgery at the University of Toronto and a peripheral nerve surgeon at the Toronto Western Hospital. He completed his neurosurgical training at the University of Toronto and a peripheral nerve surgery fellowship under the mentorship of Dr. Rajiv Midha at the University of Calgary. Dr. Suppiah is the recipient of the Elizabeth Raab Early Career Investigator Chair in Neurofibromatosis Research. He was also awarded the prestigious Francis S. Collins Scholar in Neurofibromatosis Clinical and Translational Research award, supporting his early career launch as surgeon-scientist
Suppiah’s clinical focus is treatment of benign and malignant tumors associated with neurofibromatosis, including neurofibromas, schwannomas and malignant peripheral nerve sheath tumors. Dr Suppiah’s research focus is on uncovering the molecular drivers of oncogenesis and malignant transformation of tumors associated with neurofibromatosis.